Same, Same, or Different? New Insights with Diversity and Ethics

Juliana Nnadi The 3rd Human Brain Project (HBP) Curriculum workshop ‘Same, Same, or Different? Neuroscience, Robotics, AI and Medical Informatics: New Insights with Diversity and Ethics’ took place at the Graz University of Technology (Austria), from 26th to 27th September 2019. The two days’ workshop showcased not only the interdisciplinary nature of HBP, but also…

Responsible Data Governance of Big Neuroscience Data

William Knight Recent paper from the Human Brain Project’s (HBP) Ethics Support team members Responsible Data Governance of Big Neuroscience Data is an attempt to conceptualise an approach to data governance which implements the tenets of Responsible Research and Innovation (RRI) into data governance processes within international neuroscience. This paper emerges from a great deal…

The Human Brain Project’s Ethics Advisory Board: Q&A with Shamim Patel

How and why the highly regarded HBP’s Ethics Advisory Board (EAB) was established? What its main achievement are? And what the future holds for the EAB? Our Question and Answer series with Ethics Support task leaders continues with Shamim Patel, task leader for the Ethics Advisory Board and Other Ethics Services. What is the Ethics Advisory Board…

Data Protection Officer in the Human Brain Project: Q&A with Kevin McGillivray

Why does the Human Brain Project (HBP) need a Data Protection Officer and what are the main challenges for this role? Our Questions and Answers series with Ethics Support task leaders continues with Data Protection Officer Kevin McGillivray. Q1: What are the aims of Data Protection Officer (DPO)? A DPO is a professional in the…

Ethics Rapporteur Programme: Q&A with Manuel Guerrero

How does the Ethics Rapporteur Programme in the Human Brain Project (HBP) work? What are its main achievements and future challenges? Our Question and Answer series with Ethics Support task leaders continues with Dr. Manuel Guerrero, task leader for the Ethics Rapporteur Programme. Q1: What are the aims of the Ethics Rapporteur Programme? The Ethics…

Engaging with emerging technologies: representation, responsibility, and reflexivity

How do we make scientists and engineers aware of societal and ethical issues? And how do we engage diverse publics with the latest developments in future and emerging technologies? What challenges do we face and what can we learn from such engagements? These were guiding questions for the panel ‘Engaging with emerging technologies: representation, responsibility…

Ethics-Related Data Governance in the Human Brain Project: Q&A with Tyr Fothergill

  What is the role of ethics in data governance in the Human Brain Project (HBP)? And how can awareness of data governance be raised within and outside the HBP? Our Question & Answer series with Ethics Support task leaders continues with Dr Tyr Fothergill, task leader for Ethics-Related Data Governance.   Q1: What are the aims…

International Data Transfers in the Human Brain Project

Simisola Akintoye The Human Brain Project (HBP) is a data-driven project, based on comprehensive use of Information and Communication Technologies (ICTs) and cloud technology for strategic research and theoretical studies. The General Data Protection Regulation (GDPR) regulates the processing and free movement of personal data by data controllers and processors and is directly applicable in…

Healthcare in the Era of Big Data: Opportunities and Challenges

Bernd Stahl I recently had the honour of being invited to contribute the conference on “Healthcare in the Era of Big Data: Opportunities and Challenges”, organised by the New York Academy of Sciences on 24 and 25 October 2018. The event brought together about 150 stakeholders from groups including academia, industry, regulators and patient representatives.…