Ethics-Related Data Governance in the Human Brain Project: Q&A with Tyr Fothergill

  What is the role of ethics in data governance in the Human Brain Project (HBP)? And how can awareness of data governance be raised within and outside the HBP? Our Question & Answer series with Ethics Support task leaders continues with Dr Tyr Fothergill, task leader for Ethics-Related Data Governance.   Q1: What are the aims…

International Data Transfers in the Human Brain Project

Simisola Akintoye The Human Brain Project (HBP) is a data-driven project, based on comprehensive use of Information and Communication Technologies (ICTs) and cloud technology for strategic research and theoretical studies. The General Data Protection Regulation (GDPR) regulates the processing and free movement of personal data by data controllers and processors and is directly applicable in…

Healthcare in the Era of Big Data: Opportunities and Challenges

Bernd Stahl I recently had the honour of being invited to contribute the conference on “Healthcare in the Era of Big Data: Opportunities and Challenges”, organised by the New York Academy of Sciences on 24 and 25 October 2018. The event brought together about 150 stakeholders from groups including academia, industry, regulators and patient representatives.…

Data Governance for Young Researchers

Tyr Fothergill As part of my work on the Human Brain Project (HBP) in the Ethics and Society Subproject (SP12), I take part in external and internal outreach events for the HBP Data Governance Working Group (DGWG), a collaborative cross-SP group dedicated to supporting innovation and infrastructure development through data governance and management. Several months…

Ethics Support @ HBP Open Day and Summit 2018

Last week the Ethics Support team was at the annual Human Brain Project (HBP) Open Day and Summit in Maastricht (Netherlands). This event was the halfway mark for the HBP which was started in October 2013 as a ten-year FET Flagship Project funded by the European Commission.   The Open Day on 15th October brought…