Q&A with Ethics Rapporteurs: High Performance Analytics and Computing

What ethical and societal questions scientists, engineers and developers in the Human Brain Project (HBP) encounter in their work? How do they deal with them? To shed some light on these questions we start Q&A series with Ethics Rapporteurs. First to answer our questions is Meredith Peyser (Forschungszentrum Jülich, Germany) from the Sub-Project 7 High…

BREXIT and Data Protection in the Human Brain Project

Simisola Akintoye In the aftermath of the United Kingdom’s (UK) intention to withdraw from the European Union (EU) pursuant to Article 50 of the EU Treaty, all EU primary and secondary law will cease to apply in the UK from 31 October 2019, 00:00 (CET) (‘The Withdrawal Date’). In view of the considerable uncertainties around…

Explainability and Counterfactuals: Algorithmic Decisions and the Individual

Tonii Leach How do AI algorithms make decisions? Why might we need to understand this, and to what extent do we need to understand this? How can we conceptualise ‘explainable’ AI? And when we ask for an explanation, what is it that we really want to know? On the 27th of February Dr Brent Mittelstadt…

Data Protection Officer in the Human Brain Project: Q&A with Kevin McGillivray

Why does the Human Brain Project (HBP) need a Data Protection Officer and what are the main challenges for this role? Our Questions and Answers series with Ethics Support task leaders continues with Data Protection Officer Kevin McGillivray. Q1: What are the aims of Data Protection Officer (DPO)? A DPO is a professional in the…

Ethics-Related Data Governance in the Human Brain Project: Q&A with Tyr Fothergill

  What is the role of ethics in data governance in the Human Brain Project (HBP)? And how can awareness of data governance be raised within and outside the HBP? Our Question & Answer series with Ethics Support task leaders continues with Dr Tyr Fothergill, task leader for Ethics-Related Data Governance.   Q1: What are the aims…

International Data Transfers in the Human Brain Project

Simisola Akintoye The Human Brain Project (HBP) is a data-driven project, based on comprehensive use of Information and Communication Technologies (ICTs) and cloud technology for strategic research and theoretical studies. The General Data Protection Regulation (GDPR) regulates the processing and free movement of personal data by data controllers and processors and is directly applicable in…

Healthcare in the Era of Big Data: Opportunities and Challenges

Bernd Stahl I recently had the honour of being invited to contribute the conference on “Healthcare in the Era of Big Data: Opportunities and Challenges”, organised by the New York Academy of Sciences on 24 and 25 October 2018. The event brought together about 150 stakeholders from groups including academia, industry, regulators and patient representatives.…

Data Governance for Young Researchers

Tyr Fothergill As part of my work on the Human Brain Project (HBP) in the Ethics and Society Subproject (SP12), I take part in external and internal outreach events for the HBP Data Governance Working Group (DGWG), a collaborative cross-SP group dedicated to supporting innovation and infrastructure development through data governance and management. Several months…

Ethics Support @ HBP Open Day and Summit 2018

Last week the Ethics Support team was at the annual Human Brain Project (HBP) Open Day and Summit in Maastricht (Netherlands). This event was the halfway mark for the HBP which was started in October 2013 as a ten-year FET Flagship Project funded by the European Commission.   The Open Day on 15th October brought…