Q&A: Point of Registration of Ethical Concerns (PORE) in the Human Brain Project

Manuel Guerrero   Q1: What are the aims of the Human Brain Project’s PORE (Point of Registration of Ethical Concerns)? The PORE utility provides a way to identify ethical, regulatory and social issues in Human Brain Project (HBP) research and innovation, which may be raised from any person from inside or outside the HBP community in any…

How does Ethics Support in the Human Brain Project work?

How does the Ethics Support work package in the Human Brain Project (HBP) work? What are the aims and main activities of Ethics Support? Who are our main collaborators within and outside the HBP? What are future challenges for Ethics Support?  To answer these and other questions and facilitate exchange of information and ideas on…

Ethics Support Outreach and Dissemination: Q&A with Inga Ulnicane

Over the last year, Ethics Dialogues blog have published Q&A with the task leaders of the Ethics Support work package in the Human Brain Project (HBP). So far, the following tasks have been introduced: Ethics Support in the HBP, Compliance Management, Support for Ethics Advisory Board, Ethics Rapporteur Programme, Ethics-Related Data Governance and Data Protection…

Engaging Scientists in Ethics

Pelumi Obasaju is a neuroscience PhD candidate with the Midlands Integrative Biosciences Training Partnership (MIBTP). This summer from July-September, she spent three months with the Human Brain Project (HBP) Ethics Support Team at De Montfort University (Leicester, UK) as part of a non-laboratory work experience element of training known as PIPS – Professional Internships for…

Responsible Data Governance of Big Neuroscience Data

William Knight Recent paper from the Human Brain Project’s (HBP) Ethics Support team members Responsible Data Governance of Big Neuroscience Data is an attempt to conceptualise an approach to data governance which implements the tenets of Responsible Research and Innovation (RRI) into data governance processes within international neuroscience. This paper emerges from a great deal…

Dynamics of interdisciplinary and inter-publics engagements

The Researcher Awareness team of the Human Brain Project (HBP) convened a session titled ‘Dynamics of interdisciplinary and inter-publics engagements’ at the 2019 Science in Public conference which took place on 10-12 July in Manchester, UK. The theme for  this year’s interdisciplinary conference was ‘the global and the local’. The aim was to increase engagement…

Ethics Dialogues summer reading list

It’s that time of year again when many of us are taking time off for summer holidays and drawing up our summer reading lists. At Ethics Dialogues we have started to put together our summer reading list covering some of the areas we are currently busy with including brain research initiatives, data governance and ethics…

Preparing for Global Public Engagement with Neuroethics

Why and how should we engage the public with neuroscience? What are the common global questions for the public engagement in neuroethics and what are national and regional differences? These were some of the questions addressed at the Global Neuroethics engagement workshop that took place 19-21 May in Uppsala, Sweden. This workshop brought together more…

Beyond box-ticking: towards ethics dialogues

‘Beyond Research Ethics: Dialogues in Neuro-ICT Research’ is the title of a recent article (Stahl et al 2019) published by the members of Ethics Support team of the Human Brain Project (HBP). This article outlines a dialogical approach that the Ethics Support team applies in its work in the HBP. This approach offers an alternative…

The Human Brain Project’s Ethics Advisory Board: Q&A with Shamim Patel

How and why the highly regarded HBP’s Ethics Advisory Board (EAB) was established? What its main achievement are? And what the future holds for the EAB? Our Question and Answer series with Ethics Support task leaders continues with Shamim Patel, task leader for the Ethics Advisory Board and Other Ethics Services. What is the Ethics Advisory Board…