Responsible management of conflicting interests: An example of the dialogue-oriented approach in the Human Brain Project
I would like to start this blog post, which should be read in conjunction with the post by Kristin Bergtora Sandvik, by thanking Kristin for her work and underlining that I see it as an outstanding example of the fruitful collaboration on ethical issues in the Human Brain Project (HBP). A few years ago we…
Re-envisioning RoI in EU research initiatives: leveraging the HBP experience for EBRAINS
There is a need to re-think RoI in EU-wide research initiatives. In this blog, the Human Brain Project‘s Ethics Advisory Board (EAB) focuses on how we can leverage the HBP experience toward EBRAINS and a culture of reflective science practices by design. This is a text written by Kristin Bergtora Sandvik, member of the EAB.…
A capacity-building programme for responsible brain research and innovation
Is responsible neuroscience research or innovation something you would like to get better at? Would you like to join other like-minded researchers, scientists and tech innovators to reflect on societal concerns of big neuroscience infrastructure like EBRAINS? Then, the capacity building programme on responsible innovation run by the Responsible Research and Innovation (RRI) team at…
Responsibility key to implementing guidelines for treating disorders of consciousness
A disorder of consciousness is a state where consciousness has been affected by devastating damage to the brain. The diagnosis and health care of patients suffering from these disorders raise several clinical as well as ethical issues. And researchers are still looking for ways to solve them. Recent guidelines, European and American, offer important recommendations…
Indicators and criteria of consciousness for behaviourally unresponsive patients
Identifying and quantifying residual consciousness in patients with disorders of consciousness is notoriously challenging but increasingly urgent. There is a high rate of misdiagnosis among patients suffering from these disorders, particularly between vegetative states/unresponsive wakefulness syndrome and minimally conscious states. A recent BMC Medical Ethics publication explores how operational indicators previously introduced to assess consciousness…
Constructing an EU agency for AI
Artificial intelligence (AI) offers great promise in terms of societal and economic benefits. But it also raises numerous ethical and human rights concerns as the technology might inherit and exacerbate flaws that are already present in society. There have been numerous calls for the regulation and legislation of AI, most prominently the EU’s 2021 proposal…
The neuroethics contribution to AI ethics and regulation
The AI ethics research field is growing rapidly. So is the number of guidelines issued to provide operational recommendations to manage the ethical issues raised by AI design, development and implementation. In a recent Neuroethics publication, Michele Farisco, Kathinka Evers and Arleen Salles suggest some of the applied issues covered by these guidelines can in…
Advancing a responsible, ethical vision for EBRAINS
On 24 January 2022, EBRAINS hosted an international consultation designed to shape its Ethics and Society Vision. The session was organized in collaboration with the Human Brain Project (HBP) experts on Ethics and Responsible Research, the meeting gathered a renowned panel of international experts. Want to know more about the meeting? Have a look on…
Increasingly big data & the pressing need for international data governance of neuroscience
Understanding the brain requires great effort and the scale of neuroscience research projects is increasing to scale. This means crossing borders in big international research initiatives, and as a result being subject to national and international laws, regulations and policies in both data collection and transfer. While neuroscience data transcends borders, data governance typically stays…
Digital twins & virtual brains: the importance of conceptual clarity and transparency
Researchers are trying to develop digital twins of the human brain by building so-called ‘virtual brains’. Trying to create virtual copies of such a complex organ, that we know increasingly yet still very little about is a great challenge. In a recent publication, Kathinka Evers and Arleen Salles explore philosophical and neuroethical challenges associated with…
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