Engaging Scientists in Ethics

Pelumi Obasaju is a neuroscience PhD candidate with the Midlands Integrative Biosciences Training Partnership (MIBTP). This summer from July-September, she spent three months with the Human Brain Project (HBP) Ethics Support Team at De Montfort University (Leicester, UK) as part of a non-laboratory work experience element of training known as PIPS – Professional Internships for…

Responsible Data Governance of Big Neuroscience Data

William Knight Recent paper from the Human Brain Project’s (HBP) Ethics Support team members Responsible Data Governance of Big Neuroscience Data is an attempt to conceptualise an approach to data governance which implements the tenets of Responsible Research and Innovation (RRI) into data governance processes within international neuroscience. This paper emerges from a great deal…

Beyond box-ticking: towards ethics dialogues

‘Beyond Research Ethics: Dialogues in Neuro-ICT Research’ is the title of a recent article (Stahl et al 2019) published by the members of Ethics Support team of the Human Brain Project (HBP). This article outlines a dialogical approach that the Ethics Support team applies in its work in the HBP. This approach offers an alternative…

Data Protection Officer in the Human Brain Project: Q&A with Kevin McGillivray

Why does the Human Brain Project (HBP) need a Data Protection Officer and what are the main challenges for this role? Our Questions and Answers series with Ethics Support task leaders continues with Data Protection Officer Kevin McGillivray. Q1: What are the aims of Data Protection Officer (DPO)? A DPO is a professional in the…

Engaging with emerging technologies: representation, responsibility, and reflexivity

How do we make scientists and engineers aware of societal and ethical issues? And how do we engage diverse publics with the latest developments in future and emerging technologies? What challenges do we face and what can we learn from such engagements? These were guiding questions for the panel ‘Engaging with emerging technologies: representation, responsibility…

Animal research ethics in the Human Brain Project: Q&A with Abdul K.H. Mohammed

Abdul Kadir H. Mohammed is Senior Professor at Linnaeus University (Sweden) and Associated at the Karolinska Institute (Sweden). He has been part of the Human Brain Project (HBP) since its start in 2013. His responsibilities at the HBP have included animal research ethics within the Ethics Support work package and organising ethics workshops within the…

Ethics-Related Data Governance in the Human Brain Project: Q&A with Tyr Fothergill

  What is the role of ethics in data governance in the Human Brain Project (HBP)? And how can awareness of data governance be raised within and outside the HBP? Our Question & Answer series with Ethics Support task leaders continues with Dr Tyr Fothergill, task leader for Ethics-Related Data Governance.   Q1: What are the aims…

International Data Transfers in the Human Brain Project

Simisola Akintoye The Human Brain Project (HBP) is a data-driven project, based on comprehensive use of Information and Communication Technologies (ICTs) and cloud technology for strategic research and theoretical studies. The General Data Protection Regulation (GDPR) regulates the processing and free movement of personal data by data controllers and processors and is directly applicable in…

Compliance Management in the Human Brain Project: Q&A with William Knight

How does compliance process work in the Human Brain Project and what are the main challenges for compliance management for the next years? We continue our Question & Answer series with Ethics Support task leaders. This time it is William Knight, task leader for Compliance Management.   Q1: What are the aims of Compliance Management?…

Data Governance for Young Researchers

Tyr Fothergill As part of my work on the Human Brain Project (HBP) in the Ethics and Society Subproject (SP12), I take part in external and internal outreach events for the HBP Data Governance Working Group (DGWG), a collaborative cross-SP group dedicated to supporting innovation and infrastructure development through data governance and management. Several months…