EHDS: Meeting the Challenges of Responsible Data Governance
Data is a cornerstone for innovation and better health care. Responsible data governance is key to the public’s trust in science and the sustainability of research. The European Health Data Space (EHDS) is the European Commission’s response to the pressing need for a trustworthy health data infrastructure that reaches across member states. Needless to say,…
Raising awareness about research integrity in big projects
According to the European Code of Conduct for Research Integrity, ‘good research practices are based on fundamental principles of research integrity”. But how can we meet the practical, ethical and intellectual challenges inherent in research with integrity, how do we manage research integrity issues in big research programmes and identify research integrity mechanisms in interdisciplinary…
Recommendations from European Citizens to EBRAINS
To ensure the success of EBRAINS, the research infrastructure that became the product of the Human Brain Project, it is important that the public trusts researcher with their data. In order to do so, it is necessary to engage the public in a conversation about their vision and fears about sharing their data with a…
A vision on socially beneficial development of the EBRAINS infrastructure
What is EBRAINS and why the need for an Ethics and Society vision? The emerging European research infrastructure EBRAINS is one of the main legacies of the 10-year EU flagship Human Brain Project or HBP, as it is often called. From the start, the European Commission and partners in the project recognised the need for reflection…
Responsible management of conflicting interests: An example of the dialogue-oriented approach in the Human Brain Project
I would like to start this blog post, which should be read in conjunction with the post by Kristin Bergtora Sandvik, by thanking Kristin for her work and underlining that I see it as an outstanding example of the fruitful collaboration on ethical issues in the Human Brain Project (HBP). A few years ago we…
Re-envisioning RoI in EU research initiatives: leveraging the HBP experience for EBRAINS
There is a need to re-think RoI in EU-wide research initiatives. In this blog, the Human Brain Project‘s Ethics Advisory Board (EAB) focuses on how we can leverage the HBP experience toward EBRAINS and a culture of reflective science practices by design. This is a text written by Kristin Bergtora Sandvik, member of the EAB.…
Advancing a responsible, ethical vision for EBRAINS
On 24 January 2022, EBRAINS hosted an international consultation designed to shape its Ethics and Society Vision. The session was organized in collaboration with the Human Brain Project (HBP) experts on Ethics and Responsible Research, the meeting gathered a renowned panel of international experts. Want to know more about the meeting? Have a look on…
The value of neuroethics and philosophical reflection in the Human Brain Project
The Human Brain Project is committed to implementing responsibility in research and innovation practices. But implementing responsibility means more than setting standards or enforcing compliance. It also means changing mindsets and promoting an ethical culture: A culture where scientific excellence also includes ethical excellence. In the Human Brain Project, we are integrating neuroethics and philosophy…
Engage with citizens about the future of neuroscience!
From November 2021 to March 2022, the Danish Board of Technology is organising citizen engagement workshops about international research collaboration and sharing of health data in neuroscience on site in 6 European countries (Denmark, Spain, Hungary, Italy, Germany & the UK). They are now inviting experts in neuroscience, neuromedicine, health data and data sharing to…
Building an EBRAINS community in Africa
Why is EBRAINS engaging in community building activities? EBRAINS has made a commitment to build a scientific research infrastructure that empowers empirical and theoretical neuroscience that is of relevance to a highly diverse and collaborative neuroscience community. We understand that ‘the success of the EBRAINS research infrastructure will depend on its ability to mobilise the…