Engaging Scientists in Ethics

Pelumi Obasaju is a neuroscience PhD candidate with the Midlands Integrative Biosciences Training Partnership (MIBTP). This summer from July-September, she spent three months with the Human Brain Project (HBP) Ethics Support Team at De Montfort University (Leicester, UK) as part of a non-laboratory work experience element of training known as PIPS – Professional Internships for…

Responsible Data Governance of Big Neuroscience Data

William Knight Recent paper from the Human Brain Project’s (HBP) Ethics Support team members Responsible Data Governance of Big Neuroscience Data is an attempt to conceptualise an approach to data governance which implements the tenets of Responsible Research and Innovation (RRI) into data governance processes within international neuroscience. This paper emerges from a great deal…

Ethics Dialogues summer reading list

It’s that time of year again when many of us are taking time off for summer holidays and drawing up our summer reading lists. At Ethics Dialogues we have started to put together our summer reading list covering some of the areas we are currently busy with including brain research initiatives, data governance and ethics…

Beyond box-ticking: towards ethics dialogues

‘Beyond Research Ethics: Dialogues in Neuro-ICT Research’ is the title of a recent article (Stahl et al 2019) published by the members of Ethics Support team of the Human Brain Project (HBP). This article outlines a dialogical approach that the Ethics Support team applies in its work in the HBP. This approach offers an alternative…

Data Protection Officer in the Human Brain Project: Q&A with Kevin McGillivray

Why does the Human Brain Project (HBP) need a Data Protection Officer and what are the main challenges for this role? Our Questions and Answers series with Ethics Support task leaders continues with Data Protection Officer Kevin McGillivray. Q1: What are the aims of Data Protection Officer (DPO)? A DPO is a professional in the…

Ethics Rapporteur Programme: Q&A with Manuel Guerrero

How does the Ethics Rapporteur Programme in the Human Brain Project (HBP) work? What are its main achievements and future challenges? Our Question and Answer series with Ethics Support task leaders continues with Dr. Manuel Guerrero, task leader for the Ethics Rapporteur Programme. Q1: What are the aims of the Ethics Rapporteur Programme? The Ethics…

Engaging with emerging technologies: representation, responsibility, and reflexivity

How do we make scientists and engineers aware of societal and ethical issues? And how do we engage diverse publics with the latest developments in future and emerging technologies? What challenges do we face and what can we learn from such engagements? These were guiding questions for the panel ‘Engaging with emerging technologies: representation, responsibility…

Ethics-Related Data Governance in the Human Brain Project: Q&A with Tyr Fothergill

  What is the role of ethics in data governance in the Human Brain Project (HBP)? And how can awareness of data governance be raised within and outside the HBP? Our Question & Answer series with Ethics Support task leaders continues with Dr Tyr Fothergill, task leader for Ethics-Related Data Governance.   Q1: What are the aims…

International Data Transfers in the Human Brain Project

Simisola Akintoye The Human Brain Project (HBP) is a data-driven project, based on comprehensive use of Information and Communication Technologies (ICTs) and cloud technology for strategic research and theoretical studies. The General Data Protection Regulation (GDPR) regulates the processing and free movement of personal data by data controllers and processors and is directly applicable in…