Beyond box-ticking: towards ethics dialogues

‘Beyond Research Ethics: Dialogues in Neuro-ICT Research’ is the title of a recent article (Stahl et al 2019) published by the members of Ethics Support team of the Human Brain Project (HBP). This article outlines a dialogical approach that the Ethics Support team applies in its work in the HBP. This approach offers an alternative…

Data Protection Officer in the Human Brain Project: Q&A with Kevin McGillivray

Why does the Human Brain Project (HBP) need a Data Protection Officer and what are the main challenges for this role? Our Questions and Answers series with Ethics Support task leaders continues with Data Protection Officer Kevin McGillivray. Q1: What are the aims of Data Protection Officer (DPO)? A DPO is a professional in the…

Ethics Rapporteur Programme: Q&A with Manuel Guerrero

How does the Ethics Rapporteur Programme in the Human Brain Project (HBP) work? What are its main achievements and future challenges? Our Question and Answer series with Ethics Support task leaders continues with Dr. Manuel Guerrero, task leader for the Ethics Rapporteur Programme. Q1: What are the aims of the Ethics Rapporteur Programme? The Ethics…

Engaging with emerging technologies: representation, responsibility, and reflexivity

How do we make scientists and engineers aware of societal and ethical issues? And how do we engage diverse publics with the latest developments in future and emerging technologies? What challenges do we face and what can we learn from such engagements? These were guiding questions for the panel ‘Engaging with emerging technologies: representation, responsibility…

Ethics-Related Data Governance in the Human Brain Project: Q&A with Tyr Fothergill

  What is the role of ethics in data governance in the Human Brain Project (HBP)? And how can awareness of data governance be raised within and outside the HBP? Our Question & Answer series with Ethics Support task leaders continues with Dr Tyr Fothergill, task leader for Ethics-Related Data Governance.   Q1: What are the aims…

International Data Transfers in the Human Brain Project

Simisola Akintoye The Human Brain Project (HBP) is a data-driven project, based on comprehensive use of Information and Communication Technologies (ICTs) and cloud technology for strategic research and theoretical studies. The General Data Protection Regulation (GDPR) regulates the processing and free movement of personal data by data controllers and processors and is directly applicable in…

Ethics and Neurorobotics workshop

What is neurorobotics and how does it differ from ‘classical robotics’? What are potential future developments in this field? What social and ethical questions might they pose and how do we address them? These were some of the topics discussed at the Ethics and Neurorobotics joint workshop bringing together researchers from the Human Brain Project’s…

Healthcare in the Era of Big Data: Opportunities and Challenges

Bernd Stahl I recently had the honour of being invited to contribute the conference on “Healthcare in the Era of Big Data: Opportunities and Challenges”, organised by the New York Academy of Sciences on 24 and 25 October 2018. The event brought together about 150 stakeholders from groups including academia, industry, regulators and patient representatives.…

Data Governance for Young Researchers

Tyr Fothergill As part of my work on the Human Brain Project (HBP) in the Ethics and Society Subproject (SP12), I take part in external and internal outreach events for the HBP Data Governance Working Group (DGWG), a collaborative cross-SP group dedicated to supporting innovation and infrastructure development through data governance and management. Several months…