How does Ethics Support in the Human Brain Project work?

How does the Ethics Support work package in the Human Brain Project (HBP) work? What are the aims and main activities of Ethics Support? Who are our main collaborators within and outside the HBP? What are future challenges for Ethics Support?  To answer these and other questions and facilitate exchange of information and ideas on…

BREXIT and Data Protection in the Human Brain Project

Simisola Akintoye In the aftermath of the United Kingdom’s (UK) intention to withdraw from the European Union (EU) pursuant to Article 50 of the EU Treaty, all EU primary and secondary law will cease to apply in the UK from 31 October 2019, 00:00 (CET) (‘The Withdrawal Date’). In view of the considerable uncertainties around…

Engaging Scientists in Ethics

Pelumi Obasaju is a neuroscience PhD candidate with the Midlands Integrative Biosciences Training Partnership (MIBTP). This summer from July-September, she spent three months with the Human Brain Project (HBP) Ethics Support Team at De Montfort University (Leicester, UK) as part of a non-laboratory work experience element of training known as PIPS – Professional Internships for…

Responsible Data Governance of Big Neuroscience Data

William Knight Recent paper from the Human Brain Project’s (HBP) Ethics Support team members Responsible Data Governance of Big Neuroscience Data is an attempt to conceptualise an approach to data governance which implements the tenets of Responsible Research and Innovation (RRI) into data governance processes within international neuroscience. This paper emerges from a great deal…

Ethics Dialogues summer reading list

It’s that time of year again when many of us are taking time off for summer holidays and drawing up our summer reading lists. At Ethics Dialogues we have started to put together our summer reading list covering some of the areas we are currently busy with including brain research initiatives, data governance and ethics…

Beyond box-ticking: towards ethics dialogues

‘Beyond Research Ethics: Dialogues in Neuro-ICT Research’ is the title of a recent article (Stahl et al 2019) published by the members of Ethics Support team of the Human Brain Project (HBP). This article outlines a dialogical approach that the Ethics Support team applies in its work in the HBP. This approach offers an alternative…

Data Protection Officer in the Human Brain Project: Q&A with Kevin McGillivray

Why does the Human Brain Project (HBP) need a Data Protection Officer and what are the main challenges for this role? Our Questions and Answers series with Ethics Support task leaders continues with Data Protection Officer Kevin McGillivray. Q1: What are the aims of Data Protection Officer (DPO)? A DPO is a professional in the…

Ethics Rapporteur Programme: Q&A with Manuel Guerrero

How does the Ethics Rapporteur Programme in the Human Brain Project (HBP) work? What are its main achievements and future challenges? Our Question and Answer series with Ethics Support task leaders continues with Dr. Manuel Guerrero, task leader for the Ethics Rapporteur Programme. Q1: What are the aims of the Ethics Rapporteur Programme? The Ethics…

Engaging with emerging technologies: representation, responsibility, and reflexivity

How do we make scientists and engineers aware of societal and ethical issues? And how do we engage diverse publics with the latest developments in future and emerging technologies? What challenges do we face and what can we learn from such engagements? These were guiding questions for the panel ‘Engaging with emerging technologies: representation, responsibility…