A paper with the title “From Responsible Research and Innovation to responsibility by design” suggests that a ‘Responsibility by Design’ approach can help mitigate some of the challenges experienced in the application of Responsible Research and Innovation (sometimes called RRI) in the Human Brain Project (or HBP). This is a relatively new concept, that can…
What is EBRAINS and why the need for an Ethics and Society vision? The emerging European research infrastructure EBRAINS is one of the main legacies of the 10-year EU flagship Human Brain Project or HBP, as it is often called. From the start, the European Commission and partners in the project recognised the need for reflection…
The ethical and social implications of using artificial intelligence in life science – or society – have become the main hurdle for implementation. The debate has intensified in recent years, bringing a long list of solutions in the form of approaches, tools and initiatives. One of the more prominent examples of this is the European…
Managing conflicts of interest is particularly important for a large publicly funded research project such as the Human Brain Project. It should not be reduced to a simplistic and narrow compliance requirement; instead, it should be considered through a wider lens as an exercise that encourages reflection on how an individual’s different activities and commitments…
I would like to start this blog post, which should be read in conjunction with the post by Kristin Bergtora Sandvik, by thanking Kristin for her work and underlining that I see it as an outstanding example of the fruitful collaboration on ethical issues in the Human Brain Project (HBP). A few years ago we…
There is a need to re-think RoI in EU-wide research initiatives. In this blog, the Human Brain Project‘s Ethics Advisory Board (EAB) focuses on how we can leverage the HBP experience toward EBRAINS and a culture of reflective science practices by design. This is a text written by Kristin Bergtora Sandvik, member of the EAB.…
Is responsible neuroscience research or innovation something you would like to get better at? Would you like to join other like-minded researchers, scientists and tech innovators to reflect on societal concerns of big neuroscience infrastructure like EBRAINS? Then, the capacity building programme on responsible innovation run by the Responsible Research and Innovation (RRI) team at…
A disorder of consciousness is a state where consciousness has been affected by devastating damage to the brain. The diagnosis and health care of patients suffering from these disorders raise several clinical as well as ethical issues. And researchers are still looking for ways to solve them. Recent guidelines, European and American, offer important recommendations…
Future and emerging technology (FET) research aims to create radically novel ideas and technologies that can disrupt and transform human lives, businesses and society as a whole. The European Commission has funded such research in its FET stream of research funding which has now been renamed as “EIC Pathfinder” programme. Such transformative research can be…
Identifying and quantifying residual consciousness in patients with disorders of consciousness is notoriously challenging but increasingly urgent. There is a high rate of misdiagnosis among patients suffering from these disorders, particularly between vegetative states/unresponsive wakefulness syndrome and minimally conscious states. A recent BMC Medical Ethics publication explores how operational indicators previously introduced to assess consciousness…
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